Muriel is on a super tight fluid restriction. She gets 730 ml (24 oz.) a day. This sounds like an adequate amount, but it is not including IV fluid going in, which has been as much as 230ml. She is also on a fat free diet. She screams for hours on end because she's thirsty. This is typical for a child who has gotten a Fontan. Some GENIUS in the PSHU thought of feeding kids with Fontan surgeries smoothies. It's not fluid or liquid if it has no ice, just fruit and Fat free yogurt. I am totally buying a new blender ;)...and a blender to donate for future Fontans to be kept in the PSHU.
BTW: If anyone is planning on a visit, Muriel would welcome a smoothie made of only fruit and fat free yogurt ;) !!!
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