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High fashion |
She has been getting IV heparin to anti-coagulate her blood (to avoid the blood clot issue we discovered in her artificial fontan vessel). That will be replaced by cumadin, which we will be going home on, presumably for life (or until they can find something better). She got her second dose of cumadin today and have been weening off the heparin. Expect to be off heparin tomorrow.
She still has the arterial line in her leg and the double access line in her left arm, and the Ng tube for giving oral meds (that has made a world of difference in her vomiting, and as a result her sodium levels are now normal). Oral meds are still fairly plentiful - some diuretics (which will continue at home for a few months), some to protect her stomach and intestines (saw some blood in her vomit, and suspect she is having stomach troubles), various electrolyte supplements. All are needed less and less though, as we get closer to getting out of here.
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Sleeping on mommy's lap |
Its starting to look like Tuesday could be the day we get discharged, which is good and bad. As Megan mentioned my grandfather passed away this week, and the funeral is Tuesday. I have family flying in today and tomorrow - will be a very busy week. Megan may have to get packed up without me here, though either her mother or sister will likely be able to help.
We should know more tomorrow as meds stop and we see how she does. It is just as likely that they will want to keep her a day or so more. We want to desperately avoid having to bring her back here, which I understand is common for children completing the Fontan. Hoping our "return" visit was built into this extended stay already.
Will keep posting even after we get home, as I am hoping this will serve as a log for before, during, and after our Fontan experience, such that other parents going through this know what they might expect to go through.
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