Happy gal!

Today was a good day!

We visited Dr. VanBergen, Dr. Shetty, and OT/PT today. Her pacemaker is going very well and we have to do at home transmission of data through a land line (who has one of those?!?), but don't have to see Dr. Shetty for 6 months!!! It feels good to be low priority!

Dr.VanBergen said she looked great. Her INR was 2.8, a bit high so we have adjusted her Coumadin dose yet again from 1/2 a pill every third day to every other day. Her liver enzymes were on track so bozintan, her next vasodialating drug has been applied for. That will probably take a month to get to go through....we also got rid of one diuretic, diaril. But the BIG NEWS is that we are trying NO OXYGEN, except at night!!!! So excited. She looks like a different child and seems so glad to not be on a 60' leash! I checked her oxygen saturation when we got home and she was 84-86%!!!
Last, we saw physical therapists that recommended she be reevaluayed by Early Intervention for possible services.

All in all, a great day!!!